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Raegan is a beautiful little baby girl who suffers from Krabbe disease. Krabbe is a deadly disease with an average lifespan of only 13 months. It is a genetic disease of the white brain matter affecting 1 out of 100,000 live births in the U.S. each year.
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Our time with Raegan is very short, but well worth every minute. We hope that you will take the time to get to know Raegan as we have. We are sure you will fall in love with her just as we do over and over again each and every day.
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